1) The document discusses integrating digital health programs around the patient by using a single integrated digital care record (IDCR) that is controlled by the patient. 2) Currently, portals and apps create fragmentation as patients have separate logins and data stored in different places. 3) An integrated approach is needed where the patient is the driver and their data and consent is centralized in one place to improve care coordination and patient empowerment.

1. DELIVERING DIGITAL PROGRAMMES AT SCALE -
INTEGRATING AROUND THE PATIENT
@patientsco
enquiries@patientsknowbest.com
www.patientsknowbest.com

2. THE PROBLEM
Patient

3. Hospital
PORTALS – CREATE EVEN MORE FRAGMENTATION
Apps and devices
• Not scalable
• Multiple sites with multiple logins
• Data in different places for the
patient
• No single source
• Patient does not own the data they
can only ‘see it’
• Not portable
Patient
Patient
GP
Patient

4. INTEGRATING AROUND THE PATIENT

5. IS THIS THE
FUTURE OF
HEALTHCARE?

6. 7 7
35
94
306
0
50
100
150
200
250
300
350
2012 2013 2014 2015 2016
Patient portal Citizen record
Personal Health Record Patient Control
The number of
mentions in NHS Board
minutes and reports,
and council minutes
and report in the last 5
years
100% of 44 STPs
mention citizen access
Dedicated chapters in
Five Year Forward
A CULTURAL SHIFT

7. WHY ARE WE NOT
SEEING THE
FUTURE NOW?

8. TAKING A JIGSAW APPROACH DOES NOT WORK
WorkflowData
Professional Economy Citizen

9. WorkflowData
Professional Economy Citizen
EHR
Electronic health records: workflow for
professionals to document their work…
critical to getting paid for their work

10. EHR
Patient portal
Patient portal: add-on to EHR for professionals to work with patients…
but this ties patient to institution
rather than tying institution to patient
WorkflowData
Professional Economy Citizen
A BOLT-ON APPROACH DOESN’T WORK

11. EHR
Patient portal
PHR
Personal Health Record: workflow for patients to document their work…
but not used by professional...so not useful to patient
EMPOWERING CITIZENS CAN BE LONELY
WorkflowData
Professional Economy Citizen

12. EHR
Patient portal
PHR
IDCR
Integrated Digital Care Record: single place for all data about the patient (in one
area only)….but patient is locked out...while patient should be only one in
WorkflowData
Professional Economy Citizen

13. EHR
Patient portal
PHR
IDCR
HIE
Health information exchange: workflow to transfer data about patient….
but traditional HIEs don’t have patient consent so don’t have mandate
WorkflowData
Professional Economy Citizen
REMOVING THE PATIENT CAUSES DATA SHARING PROBLEMS

14. EHR
Patient portal
PHR
IDCR
HIE
Many digital strategies incorrectly separate these technologies
WorkflowData
Professional Economy Citizen
SEPARATION CAUSES PROBLEMS AND DELAYS

15. Patient portal
PHR
IDCR
HIE
EHR
Many digital strategies incorrectly joined up these technologies by
focusing on the professional’s interest
WorkflowData
Professional Economy Citizen
JOINING TECHNOLOGIES CAN DISRUPT INNOVATION

16. Patient portal
PHR
IDCR
HIE
EHR
Many digital strategies incorrectly let professional’s interest drive
the community’s interest leaving out the patient
WorkflowData
Professional Economy Citizen
REMOVING THE PATIENT FRAGMENTS THE TECHNOLOGY

17. EHR
Patient portal
PHR
IDCR
HIE
The patient’s interest should be driver
The patient should be in control
WorkflowData
Professional Economy Citizen
THE PATIENT SHOULD BE THE DRIVER

18. EHR
Pharmaceuticals
Pharmacies
Secondary care/hospitals
Primary care health services
Employers
Relatives
GP
Charities & Patient Advocacy
Groups
Government & Commissioning bodies
Researchers
Mobile device and app developers
Community teams
Specialist services
Social services
WorkflowData
Professional Economy Citizen

19. WHAT ARE THE
BENEFITS?

20. • Granular consent to share
information driven by the patient and
professional
• See all the data in one place –
reduce duplication and delays
• Shift more patients to remote
follow-up and home management
• Save time and resource by sending
letters, reports and labs
electronically to patients and other
professionals
• Reduce non-attendance through
electronic appointments
• Enhance care coordination for
care pathways
FOR PROFESSIONALS

21. • Receive your information
electronically (appointments, letters,
reports, test results)
• Manage your own care through
shared care plans, symptom
tracking and device connectivity
• Access your clinical team at a
time that is convenient to you (and
them!)
• Share your information with
whoever you trust and wherever
you go
• Integrate your apps and devices,
so all information is in one place
FOR PATIENTS

22. WHAT IS THE
RETURN ON
INVESTMENT?

23. LONG TERM CONDITIONS
MANAGED BY REMOTE OUT
PATIENTS APPTS
£29
PER PATIENT COST
SAVING ON REDUCED
ADMIN
£2.32
AVERAGE COST OF
EACH PAPER
LETTER SENT THAT
CAN BE SAVED
TWICE AS MANY VIDEO
APPOINTMENTS CAN
BE DONE COMPARED
TO FACE-TO-FACE
6 PATIENTS CAN BE DEALT
WITH BY PRACTICE STAFF
OTHER THAN GP
%
£120.67 COST OF DNA AND SMS
REMINDERS REDUCE
DNA RATE BY 29.9%
PATIENTS WOULD
AVOID GP CONTACT IF
SELF-MANAGEMENT
TOOLS AVAILABLE
GO ONLINE FOR HEALTH
CARE INFORMATION
FOR EVERY £1 SPENT CAN RETURN £3-£8
IN COST SAVINGS*
71%
51%
40%
50%
60%
70%
80%
Without PKB With PKB
REDUCE UNPLANNED
EMERGENCY
APPOINTMENTS BY 20%
BENEFITS
64%
INCREASE IN PATIENT
ACTIVATION

24. RETURN ON INVESTMENT

25. Direct cash releasing benefits:
1. Paperless
2. Non-attendance reduction
3. Shift to virtual services – outpatient appts online

27. WHO ARE PATIENTS
KNOW BEST?

28. 4CONTINENTS
THAT PKB IS
BEING USED
ACROSS
7COUNTRIES USING PKB
…AND GROWING
15 WORKFLOW TOOLS FOR
PATIENTS AND PROFESSIONALS
100
DEVICES AND APPS INTEGRATED WITH PKB
2,300,000
LARGEST POPULATION
COVERAGE WILL BE IN A
SINGLE DEPLOYMENT
120
PAYING
SITES USING
PKB IN 2016
Messaging, care planning, surveys,
web video, symptom tracking,
resource library, appointments,
home monitoring, medications…
+
+
+
xy
GROWTH OF
PKB
ADOPTION
AND USAGE
1RANKED IN WORLD FOR PATIENT ACCESS TO MEDICAL RECORDS
RANKED IN EUROPE FOR eHEALTH
#
19 LANGUAGES
42PEOPLE ACROSS 12
COUNTRIES
9YEARS OF EXPERIENCE
20,039,386
MESSAGES BETWEEN PATIENTS
AND PROFESSIONALS
237,639
CLINICAL DATA
POINTS INTO PKB
English, Dutch, Polish,
French, German, Arabic,
Chinese, Russian, Welsh,
Spanish, Hindi, Gujurati,
Greek, Swedish,
Portugese, Tamil, Urdu,
Turkish, Bengali

29. @patientsco
lloyd@patientsknowbest.com
PATIENT PORTAL CITIZEN RECORD IDCR (CLINICAL PORTAL)