1. SUGGESTED RESOURCES for healthcare professionals
2010
MDSC
Massachusetts Down Syndrome Congress (MDSC) www.mdsc.org
Parents’ First Call Program (800) 664-MDSC
Please feel free to call anytime 24/7 MDSC Family Support Director: Sarah Cullen E-mail: scullen@mdsc.org
Children’s Hospital Down Syndrome Program – sees families www.childrenshospital.org/downsyndrome (857) 218-4329
prenatally as well as children from birth to age 18
Prenatal Booklet for expectant families English and Spanish in same booklet – www.canisterbooks.com
Understanding a Down Syndrome Diagnosis
Brighter Tomorrows - An interactive tutorial to provide physicians www.brighter-tomorrows.org
with current knowledge about Down syndrome, as well as the
communication tools to adequately support families and
prospective parents at the point of the initial diagnosis of Down
syndrome.
Online course through Harvard Medical School Dept of To access the course, please visit
Continuing Education: http://cmeonline.med.harvard.edu/course_descriptions.asp?Course_id=121
Down Syndrome: Healthcare Updates for the Primary Care
Pediatrician
Down syndrome is the most common chromosomal condition in
humans, but do you know the latest evidence-based medicine on
how to best manage these patients? Much has changed since

2. medical school! Many healthcare guidelines and emerging
literature are changing the way that individuals with Down
syndrome are diagnosed, followed, and managed. Astute
physicians can now detect associated conditions before they
become symptomatic in an effort to maximize health care
development. The goal of this course if to review the latest
advances in healthcare management of children with Down
syndrome so that primary care pediatricians and other interested
health care professionals can provide exceptional care.
Prenatal Booklet for expectant families English and Spanish in same booklet – www.canisterbooks.com
Understanding a Down Syndrome Diagnosis
National Down Syndrome Society www.ndss.org - Info in English and Spanish
(800) 221-4602
“A Promising Future Together” packet, which includes healthcare
guidelines, is free to new parents from NDSS
National Down Syndrome Congress www.ndsccenter.org - Info in English and Spanish
Growth Charts and Circumference Charts www.growthcharts.com
Down syndrome health issues www.ds-health.com
Down Syndrome Educational Trust www.downsed.org
Adoption information DSAGC Adoption Awareness Program
www.dsagc.com/programs_adoption.asp
Robin Steele at rsteele@zoomtown.com
888-796-5504