The views expressed in the presentations are that of the author and do not necessarily reflect the views of the Government of Canada. Presentations are shared in the original format received from the presenter. Presentations given at the Conference to Develop a Federal Framework on Lyme Disease are the property of the author, unless otherwise cited. If you reference the author's work, you must give the author credit by naming the author and their work as well as the place and date it was presented. For more information, contact the Lyme Disease Conference Secretariat at maladie_lyme_disease@phac-aspc.gc.ca

1. Tickborne Disease Educational
Materials & Methods
from the Centers for Disease Control and Prevention
Christina Nelson, MD, MPH, FAAP
Medical Epidemiologist
Conference to Develop the Federal Framework on Lyme Disease
May 16, 2016
Ottawa, Canada
National Center for Emerging and Zoonotic Infectious Diseases
Division of Vector-Borne Diseases

2. Presenter Disclosure
• Presenter: Christina Nelson
• Relationships with commercial interests:
– Grants/Research Support: None
– Speakers Bureau/Honoraria: None
– Consulting Fees: None
– Other: None

3. Objectives
 Discuss methods used for determining
information needs
 Review CDC materials offered for clinicians and
public health practitioners
 Review CDC materials offered for the public
 Introduce Lyme Corps, a train-the-trainer program
for tickborne disease prevention and education

4. DETERMINING INFORMATION
NEEDS OF CLINICIANS

5. Determining Clinicians’ Needs
What do they already know?
 DocStyles survey
 Qualitative interviews
What do they want to know?
 Qualitative interviews
 Internet hits
 Inquiries to CDC from clinicians
How do they want to get information?
 Online
 Webinars
 Meetings

6. DocStyles Survey
 National health care provider survey
 Approximately 2,000 clinicians participate throughout U.S.
 Provides regional estimates, not state-specific
 Licensed through Porter-Novelli
 Used by many CDC programs
 Lyme-related questions submitted in 2009 &
2011-2015

7. 0%
10%
20%
30%
40%
50%
60%
70%
CDC.gov
website
Other
websites
Published
materials
Meetings Guidelines
%CliniciansUsingSources
Specific Sources for Tickborne Disease Management
DocStyles 2009—Information Sources
Used by Clinicians

8. Information and Interviews—On the Road
Exhibit at high-impact
medical conferences
to distribute materials and
meet front line providers
 American Association of Nurse
Practitioners, 2015 & ‘16
 American Academy of Family
Physicians, 2015
 National Association of School Nurses,
2013
 American College of Emergency
Physicians, 2012
 American Academy of Physician
Assistants, 2012

9. Next steps . . . Putting this information to
use

10. RESOURCES FOR CLINICIANS &
PUBLIC HEALTH PRACTITIONERS

11. www.CDC.gov/lyme

12. Flow chart regarding Lyme disease testing
www.cdc.gov/lyme/healthcare/clinicians.html

13. Tickborne Diseases of the United States:
A Reference Manual for Healthcare Providers
• View pdf online at www.cdc.gov/Lyme
• Order hard copies at www.cdc.gov/pubs/
• Look for the 4th Edition, coming soon!
Includes:
• Tick ID
• Disease maps
• Symptoms
• Lab diagnostics
• Treatment
• References
• Prevention

14.  Pictures of 9 different
ticks. Includes info on
geographic distribution
and the pathogens they
may carry.
 Picture of engorged
tick
 Many different tickborne
diseases included

15. Special section
highlighting
atypical
erythema
migrans

16. Tickborne Diseases of the United States App
• iOS and Android
http://www.cdc.gov/mobile/applications/MobileFramework/tickborne-diseases.html
Includes:
• Tick ID
• Disease maps
• Symptoms
• Lab diagnostics
• Treatment
• References
• Prevention

17. CDC/Medscape Expert Commentary
Videos
 Two-tier testing video: 27K views in first 3 weeks
 PCR testing video: 12K views in first week

18. Webinars
Clinician Outreach Communication Activity
(COCA) call
 Lyme disease epidemiology and clinical features –
March 2012
• 488 audio lines and 404 webinar links accessed
 Tickborne diseases: A springtime review of diagnosis,
treatment and prevention – April 2014
• 351 audio lines and 255 webinar links accessed
Upcoming COCA call – “TBD Updates”
 May 24th, 2016
 CME credit will be available
 http://emergency.cdc.gov/coca/calls/index.asp

19. RESOURCES FOR THE PUBLIC

20. www.CDC.gov/lyme

21. Lyme Disease Communication Toolkit
Brochure
 Lyme disease: What you need to know
Fact Sheets
 Lyme disease prevention fact sheet for outdoor
workers
 Lyme disease prevention fact sheet for hikers
 Lyme disease fact sheet for pregnant women
 Lyme disease fact sheet for parents
Radio PSAs
 Lyme disease prevention (3 versions)
Trail Sign
Lyme Disease Prevention for Kids
 Crossword puzzle and information sheet for kids
 Prevention bookmarks

22. Public Interest in Informational Materials
Web site
 www.cdc.gov/lyme
Views in 2015: 7.5 million
(Up from 1.9 million views in 2009)
Popular Publications
 In 2015, the Lyme disease bookmark and the
brochure, Lyme disease: What you need to know,
were the 9th and 10th most popular CDC
publications, respectively, with 136,000 and 76,000
units ordered.
 Order at:
http://wwwn.cdc.gov/pubs/CDCInfoOnDemand.aspx

23. LYME CORPS

24. Lyme Corps: Addressing a Need
 Education about Lyme disease is essential
 Prevention messages
 Highlight available resources
Many are not aware of the resources we have available
 The problem: Lack of manpower
 Lyme Corps objective: Develop and train a talented, committed
team of students and residents who provide Lyme disease education
and outreach to both health care providers and the public.
 Focus is on prevention and early recognition/treatment of
tickborne diseases

25. Lyme Corps Activities
 Collaborate with universities and
state/local health departments
 Post prevention signs, write
prevention articles, etc.
 Harness participants’ existing
talents and interests
 Additional manpower for
prevention research
 Example project: “The Heat Is On:
Killing Blacklegged Ticks in Residential
Washers and Dryers to Prevent
Tickborne Diseases”

26. Thank you!
Acknowledgments
Public Health Agency of Canada
Lyme Disease Conference Planning Committee
Jessica Pautz
Paul Mead, MD, MPH
Anna Perea, MS
Alison Hinckley, PhD
Kiersten Kugeler, PhD
Sarah Hook, MFA
National Center for Emerging and Zoonotic Infectious Diseases
Division of Vector-Borne Diseases l Bacterial Diseases Branch

27. For more information about the items mentioned in this
presentation, please contact Anna Perea at juo1@cdc.gov
For general CDC inquiries:
Telephone, 1-800-CDC-INFO (232-4636)/TTY: 1-888-232-6348
E-mail: cdcinfo@cdc.gov Web: www.cdc.gov
The findings and conclusions in this report are those of the authors and do not necessarily represent
the official position of the Centers for Disease Control and Prevention.
More questions?
See www.cdc.gov/Lyme
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